Monday, March 29, 2010

Social-get-together April 7th to 10th

Mary Pringle and Christy Kirkpatrick have set up a social weekend for families the weekend of April 7-10th. at the La Quinta Inn & Suites in Ft. Myers.
No conference, no meeting, just social time between some families (mostly younger children will be attending, but anyone is welcome). A great time to bond with other families and share.
For more info. you can contact

Mary email

Christy email

Hello, we're having a spring break getaway at the la quinta inn in Fort Myers, April 7-10.

La Quinta Inn & Suites Ft. Myers - Sanibel Gateway
20091 Summerlin Rd
Fort Myers, FL 33908

we'll be there the 8-9. Jennifer Cheshire

If you could please forward the information to other FL families. I'm not sure how far of a drive it is for you, but it would be great to get everyone together again.


I blog daily in my family blog which has many real situations of what life is like living with this disability in our family. Each family, each child is different but the same in many ways. Please visit to get the day to day story.

Tuesday, December 8, 2009

Families sharing non food activities for the Holidays

Decorate ornaments
Go caroling
Make homemade holiday cards
Create scrapbook pages that you can add all the great photos you take at the holidays
Host a Turkey Trot (Thanksgiving)
Walk the neighborhood looking at Christmas lights.
drive around town and "judge" decorated houses and compare scores
stretch out gift opening,
take gifts to neighbours
sing carols to elderly homes
play games and do puzzles together
make a special family album (music album that is)and have a Christmas dance
check out all the local tree lightings
see the nutcracker or rent it and invite people over
Create a traveling dinner so time stretches the day out(we all have to eat) make each special and who can do the best tasting low calorie item
Light a fire outside make up Winter wonderland stories.
be a secret santa for a child at a shelter...

Monday, December 7, 2009

Tressa keeps me on my toes, my mind keen and all the mental use I have left in tact... LOL You must must must be able to have humor as part of your day. This happened tonight in less than 2 seconds as I took a cap off one pill bottle and opened another during routine night we had in home support who put all the food in the locked kitchen just a different location and the split seconds is all it takes for a person with PWS to seize the opportunity... AMAZING

In less than 2 seconds/2 slices/160 cals